Alison had two surgeries for the condition.
The drug, which treats a rare and serious condition, has been listed on the PBS for the first time.
Alison hopes others will be spared the same experience.
The drug was approved after a long process of advocacy and clinical trials.
The condition affects a small number of people but can be life-threatening.
The PBS listing means the treatment is now available to patients at no cost.
Alison’s experience highlights the challenges of accessing specialist care.
The approval comes after years of lobbying by patient groups and medical professionals.
The drug is expected to improve outcomes for patients with the condition.
This marks a significant step in making rare disease treatments more accessible.
